Day +3

Yesterday was another good day. Ava was thrilled to be allowed pizza one last time before her immune system depletes. Because of the risk of bacteria and new allergic reactions after chemo, we are not allowed any fruit, salad, nuts, chocolate, dairy, or yeast in the room, so this was a real treat for her. My day was made by a visit from Laura Pigorini, who came all the way to Milan with exciting news about the charity auction and messages of support. We Feel blessed to have such kind and thoughtful friends.

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Day +2

Today has seen Ava get back into her exercise routine and enjoy playing 'Frozen'. We have around 5 days until the chemo depletes her immune system and starts showing its effects. Until then, we're just trying to keep busy... Thanks for your messages! GM

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Day +1

It is day +1 post transplant and Ava is doing really well. She is up and dressed and playing happily. Now we begin the slow process of monitoring the fall and rise of her immune system and charting the progress of her engraftment. We expect to be in isolation around 60 days. We are thankful to be off to a great start. GM

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Thank you

Our heartfelt thanks to everyone for their kind wishes and support. We are both surprised and thrilled by the amount raised at the cake sale! Please do keep your messages coming. We are in an isolation unit, so any contact from the outside world is much appreciated. I will post regular updates here for anyone interested in following Ava's treatment. George (Ava's Mum)

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Bake sale thank you!

A huge thanks to everyone who baked, helped and bought the wonderful goodies on offer today in support of ArchAngel MLD Trust. The cake sale was a huge success with over £650 raised!

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Fundraising events

We will start our fund raising at Ava's school, Francis Holland School SW1, on Friday March 28th with a cake sale organised by the charity team at the school. Come at 12:20pm!

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ArchAngel MLD Trust: Reason for being

The reason for the ArchAngel Trust: A lovely seven year old named Ava. Ava was recently diagnosed with Metachromatic Leukodystrophy (MLD), a terminal illness, affecting around 1 in every one hundred thousand people. Her family found themselves in very unfamiliar territory with little help and information due to the rareness of MLD. London’s children’s hospitals and specialists said there was nothing they could do and sent them away with a few website links and little hope. Through research, her parents discovered the San Raffaele Hospital in Milan, Italy, where a ...

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