Our heartfelt thanks to everyone for their kind wishes and support. We are both surprised and thrilled by the amount raised at the cake sale!
Please do keep your messages coming. We are in an isolation unit, so any contact from the outside world is much appreciated. I will post regular updates here for anyone interested in following Ava's treatment.
George (Ava's Mum)
A huge thanks to everyone who baked, helped and bought the wonderful goodies on offer today in support of ArchAngel MLD Trust. The cake sale was a huge success with over £650 raised!
We will start our fund raising at Ava's school, Francis Holland School SW1, on Friday March 28th with a cake sale organised by the charity team at the school. Come at 12:20pm!
The reason for the ArchAngel Trust: A lovely seven year old named Ava.
Ava was recently diagnosed with Metachromatic Leukodystrophy (MLD), a terminal illness, affecting around 1 in every one hundred thousand people. Her family found themselves in very unfamiliar territory with little help and information due to the rareness of MLD. London’s children’s hospitals and specialists said there was nothing they could do and sent them away with a few website links and little hope.
Through research, her parents discovered the San Raffaele Hospital in Milan, Italy, where a ...